Dr. Emil Kakkis, American Geneticist

Dr. Emil Kakkis, American Geneticist

Dr. Emil Kakkis is an American geneticist who works to fight against rare diseases and disorders. In 2009, Emil Kakkis created the Kakkis EveryLife Foundation in order to accelerate biotech innovation for rare diseases. This foundation would go on to initiate the CureTheProcess Campaign which is dedicated to improving the regulatory and clinical development process for rare diseases. Since its inception, over 175 patient organizations and physician society partners have endorsed the campaign. The foundation also supports projects with similar ideals, including RareArtist.org, EveryLife Art Contest, Global Genes Project, National MPS Society, Rare Disease Legislative Advocates and the SIMD’s North American Metabolic Academy (NAMA). As for Kakkis himself, he has worked with the FDA and Congress to help his goals, and this work led to the Brownback Brown Amendment to the 2010 FDA appropriation bill. The amendment required the FDA to review its rare disease regulatory policies and look for ways to improve.

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Emil Kakkis

Source: Emil Kakkis. (2012, August 21). In Wikipedia, The Free Encyclopedia. Retrieved October 15, 2012, from http://bit.ly/lz6mh7

Link: Dr. Emil Kakkis (via EveryLife Foundation for Rare Diseases)

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